RESOURCES

Here are some web links that provide great information - in no particular order.  I will annotate the list and add more resources as time goes on.

http://foodforbreastcancer.com/

http://www.hopkinsbreastcenter.org/services/ask_expert/

http://www.lbbc.org/get-support/5-ways-we-can-help

http://www.hopkinsmedicine.org/breast_center/treatments_services/survivor_care/reducing_recurrence.html

http://breast-cancer.oncotypedx.com/en-US/Patient-DCIS/WhatIsTheOncotypeDXCancerTest.aspx

http://www.uptodate.com/contents/ductal-carcinoma-in-situ-treatment-and-prognosis#H1987683

http://www.breastcancer.org/symptoms/diagnosis/path_checklist

http://www.dcis.info/understanding_risk.html

http://nomograms.mskcc.org/Breast/DuctalCarcinomaInSituRecurrencePage.aspx

http://www.breastcancer.org/

http://www.drstevenkatz.com/wp-content/uploads/Addressing-Overtreatment-in-DCIS_new.pdf

http://www.cancernetwork.com/asco-2015-breast-cancer-symposium/dcis-recurrence-rates-cut-half

http://www.healthnewsreview.org/2015/08/new-dcis-study-news-release-lead-mixed-messages-wonder-patients-get-confused/

 

http://breast-cancer.ca/progfacts-dcis/

 http://www.captodayonline.com/dcis-real-risk-lie/  here's a very detailed discussion about dcis - it is a tough read to slog thorough, but

well worth the effort.

https://breast-cancer-research.biomedcentral.com/articles/10.1186/s13058-014-0446-2#Tab1  I just found this article and, while long and technical, there is n excellent section about lifestyle style changes and quantifying their benefits.  Definitely worth the read

http://jnci.oxfordjournals.org/content/95/22/1692.full

http://www.nytimes.com/2016/08/25/science/gene-tests-identify-breast-cancer-patients-who-can-skip-chemotherapy-study-says.html?mabReward=CTM&action=click&pgtype=Homepage&region=CColumn&module=Recommendation&src=rechp&WT.nav=RecEngine
NOTE:This article applies to early stage (1 and 2), not dcis.  but is interesting breakthrough research and here is the link to the summary of the research study itself: 
http://www.nejm.org/doi/full/10.1056/NEJMoa1602253

http://www.nytimes.com/2016/10/02/opinion/sunday/tom-brokaw-learning-to-live-with-cancer.html?action=click&pgtype=Homepage&clickSource=story-heading&module=opinion-c-col-left-region&region=opinion-c-col-left-region&WT.nav=opinion-c-col-left-region&_r=0
(Not exactly relevant to dcis, but Brokaw's words of wisdom ar always welcome)

http://www.practiceupdate.com/c/46345/1/1/?elsca1=emc_enews_expert-insight&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=MjM0NzU4NTk5NzAxS0&lid=10332481
(a research study that discusses the value of Vitamin D in preventing recurrence)

http://articles.latimes.com/2010/oct/01/news/la-heb-breast-cancer-exercise-20101001
(article discusses the value of exercise in prevention)

http://www.aicr.org/press/press-releases/2017/new-report-breast-cancer-alcohol-exercise.html

 (article discusses current research on lifestyle changes to reduce breast cancer risk-pretty basic, but clear)

 

 

Books

1.  The new generation breast cancer book : how to navigate your diagnosis and treatment options--and remain optimistic--in an age of information overload Elisa Port, MD, FACS, chief of breast surgery at The Mount Sinai Hospital and co-director of the Dubin Breast Center in Manhattan

2.  Life After Trauma, Rosenbloom and Williams 
A revelation for me was when I discovered that I guess I had a form of PTSD (post traumatic stress syndrome).  Certainly not at the level of soldiers after being in a war, and I really don't mean to minimize soldier's horrible stresses and experiences.  But this journey ahs an aspect of PTSD too.  Learning how to cope with my emotional reactions has been hugely helpful.



3.  From Zero to Mastectomy: What I Learned and You Need to Know About Stage 0 Breast Cancer.  Jackie Fox.
I  began reading this book and quit after the second chapter.  It is by a woman who has experienced dcis.  We all have war stories.  I don't believe we need to read or hear about each other's scary stories.  Every one of us has experienced some tough incidents and times as we go through this journey.  War stories don't help.  Constructive advice helps.  I better get going on my page dedicated to constructive advice.  Reading this book has not been my first tough war story.  I spoke to a survivor of a higher grade breast cancer and I truly belive she enjoyed disgorging the emotional residual of her tough times.  So far, in my reading of this book, I experienced the same phenomenon. 
After reading her experience, my advice is to:
 1) get to the best breast cancer speiailists - surgeon, oncologist, radiologist and oncologic radiologist - that your health insurance and geographic location allows;
2) learn as much as you can about dcis - the diversity of the condition and the diversity of treatment options;
3) try to stay calm enough to absorb all the information that comes at you;
4) take your time in deciding your course of treatment - listen to your doctors, but critically evaluate their recommendations based on your research
5) learn who you can talk to - family and friends can be a fantastic, vital support system but learn to accept that some cherished family or friends just aren't helpful.